In my previous post I discussed what I believe to be the most important paths to patient engagement without technology. I would like to now follow-up and discuss how technology can promote patient engagement. This technology might be in the form of a health/medical app, a patient portal, information derived and transmitted via a sensor, or other type of digital health technology.
1. Technology is always to be utilized as an adjunct tool, not the sole solution. This is probably the most fundamental consideration. I chuckle when I hear of a technology presented as a ‘solution.’ Solutions do not occur in a vacuum. Technology must always be incorporated into some process, whether it is limited to the user or spans a network of individuals. Much data might be generated, but if it resides in a magic silo without it being filtered and translated into a meaningful actionable message, it is useless. It is also useless if the following four issues are not addressed.
2. It must be used with consideration of health literacy, ethnicity, and language. The patient experience is a phrase getting much attention these days. While there is little in the way of data correlation between quality and patient satisfaction, one cannot argue that intuitively if cultural, ethnic and language barriers are addressed with technology tools, the potential for reduced medical errors, better patient satisfaction and perhaps even better outcomes might result. In searching for such a tool, I found a unique and interesting technology called SpeechMed which incorporates language translation into connected platforms. Improving language literacy will undoubtably improve health literacy. Platforms should also take into account ethnic and cultural differences which might imply utilizing a different user interface for selected populations (as well as ages).
3. It must include the caregiver. Any technology aimed at self-management needs to take into consideration the caregiver. The importance of technology in assisting caregivers is discussed in a review entitled Family Caregiving and Transitional Care by the Family Caregiver Alliance. The role of technology and the caregiver has also been discussed in a previous post by me.
4. It must be connected. I believe that the patient portal is the single most important key to patient self-management. It can serve as a repository for medical records including videos, pdf files, medical apps, and other content. For this piece of the puzzle to be most effective, it must permit connectivity from diverse technological sources. Barriers to this are economic and political, not technological. As the patient portal market and health information exchanges mature (Stage 2 of Meaningful Use which dictates the use of patient portals only requires that 5% of patients have them), I see connectivity becoming less of an issue. The development of open sourced platforms will also help in this regard. The patient portal can thus become the source of convergence of many different digital health technologies.
5. It must be endorsed, not despised by healthcare providers. Technological advances in therapies are expected and even anticipated by many healthcare providers. They are seen as symbols of progressive and modern medicine. Yet due in large part by experiences with EHRs, many providers to push back other types of digital technologies. If technologies are easy to use, are accepted by the patient and caregiver, provide demonstrated benefit, and deal with data in a filtered and algorithmic manner, attitudes would change. As a former practicing clinician who speaks with former colleagues daily, this is not a small barrier.
I look forward to hearing thoughts from readers about these points. Patient engagement is going to be a cornerstone of healthcare in the future. We must find the best ways in which to achieve it, with both humanistic and technological factors considered.
There is not an argument I could present to disagree with any of your points of engagement. My only addition is that developers (companies) would be so much better served if they incorporated the professional and patient communities in their design, development and testing. Meaning the nurse, doctor etc and the end-user, patient. I am mostly referring to design. I have seen so many patients try to work with tools, digital equipment etc and have difficulty. Sometimes a simple change would have made the difference instead of it being placed away in a drawer.
I wholeheartedly agree Anneliz. I have echoed that sentiment elsewhere (http://davidleescher.com/2013/01/31/five-pitfalls-of-designing-a-medical-app/). thank you for your support and your own efforts towards better patient care.
David, enjoyed reading both parts of your post. I agree strongly with your 2nd point on health literacy and language barriers. For a multilingual health care communication tool developed by doctors, please have a look at UniversalDoctor (www.universaldoctor.com), a multilingual eHealth web and mobile application for doctors, hospitals and patients aiming to overcome language barriers between health care providers and patients. We’ve got over 15 languages and thousands of sentences and continuously working to add more. Would appreciate any feedback. - Jordi Serrano Pons
Thank you Jordi. Language barriers as well as cultural ones must be considered in all aspects of healthcare to promote maximal self-management. Communication is hard enough in English between providers and patients.
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Great article David. The need for integration of the healthcare provider into so called solutions is critical, and unfortunately often missing. There are too many examples of technology solutions designed in isolation of providers which have failed. I am the first to admit that we as providers have not been perfect in our engagement, but we need to make sure we take a more active role in Ehealth or we will be doing a disservice to our patients and our profession.